...well, sort of.
The doctors and surgeons had their big weekly meeting this morning, and here's what they decided after discussing Sara's case:
* They will finish the full course of antibiotics (7 days, which started Sunday night) and do surgery early next week.
* BUT because Monday is a holiday (can't do surgery on Martin Luther King Jr. day I guess...) it most likely won't be scheduled until Tuesday or Wednesday of next week. So another week of waiting.
* They WON'T be extubating her (removing the breathing tube) while we wait for surgery because one of the drugs she is on which is necessary to keep her stable has the side effect of apnea, or pauses in breathing. SO, she needs the tube, even though she seems to be breathing on her own for the most part. A good sign that hopefully once she is off this particular drug, after surgery she will be able to breathe on her own pretty quickly.
* The surgeons will be going in through the front, cutting the sternum to open the ribcage in order to perform the surgery.
* They will be removing the part of the aorta that is pinched, and also repairing another section (the transverse arch) that is narrowed.
* Recovery should be anywhere from 1-2 weeks. She will be able to come home once the incision is healed, and when she can breathe and eat on her own.
I think that pretty much covers it. If anybody has any questions about anything, please post a comment and I'll answer the best I can!
6 comments:
Atleast you guys have a plan now. I hate waiting to find out when surgery is. That is the worst. We are always thinking and praying for your family. So do you have a freezer full of milk yet?
Ick! No fun. We are thinking about you. Sara's BFF wants her to be home soon, so they can "play."
Beki - yes, I've been slowly building up a supply of milk in the freezer! I'm not producing as much as I was at first because Sara was eating less and less the few days before we took her into the hospital, so I kind of lost my milk a little, but I've been pumping regularly to get it back.
Sara must get her fighting spirit from her mommy. I am so proud of you for pumping to keep up your milk! Way to go!
Whoa, that is crazy. That is amazing that they can fix a heart and she can recover in 1-2 weeks. Hang in there!
I agree with Marisa- good work on pumping. I pumped for over a year when I went back to work and I know, it's no fun. Nursing is wonderful- nice snuggly time. It's kind of hard to look a pump in the eye or snuggle it!!! I'm so glad to hear that Sara is doing better. You are so strong Anna and Rob. Thank you for keeping us all in the loop. XOXOXOXOXO
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